Comments on Manie's Blog: 4 Years Ago On This Day March 17

I feel for what you are going through. I know it i...

2008-04-22T13:50:00.000-05:00

I feel for what you are going through. I know it is hard to deal with, but you have someone to relate too now. Your not alone.

The anger that one can feel can never be explained or taken away. This anger at times can burn through your soul like the intensity of a thousand burning suns. We do what mothers do and deal with it.

These are our children and we love them. We are forced to watch as their lives are at times unbearable for them. We live with the fact that we took a pill that caused it. But we deal with it because we are mothers.

If you have not already make sure to contact a lawyer about taking paxil while pregnant. You only have a short time frame to file a case.

I hope the best for you and your children. It is a tough road, but your not alone. I understand the unexplainable feelings you feel. If you need to you can email me at give2manie@yahoo.com.
Julie

I have been all over the web trying to find other ...

2008-04-22T12:16:00.000-05:00

I have been all over the web trying to find other mothers or fathers that I can relate to. By far my son has not been through so much. My heart goes out to you.

I was on Paxil while I was pregnant with my son. He had a closed valve at the bottom of his stomach at three weeks (Pyloric Stenosis). And he had a hernia at six months with fluid down to his knees. It looked like he had lyposuction when they were done.

By far the hardest is that he has "Autistic-like" symptoms. As he gets older they seem to get worse. However, it's more like bad wiring where he wants to come out and can't. He fights his hands to use a crayon or fork. He has tremors, especially when he tries to use fine motor skills. He has to think about what he wants to say or it comes out like gibberish. He's four.

He had a hole in his heart, but it resolved by six months. He's going in for an MRI this month. He doesn't qualify for special ed, but he doesn't fit with normal kids. He's really smart, but needs help.

His sister is 13 months younger. She had a hole in her heart and had colic so long that we didn't know when it ended. By two she was in anger classes because she was so violent. My son has scars on his face from her attacks. She's getting better (she's 3 this month), but just this weekend she hit my son hard enough to split his lip open about an inch and a trip to the ER.

Paxil is wicked stuff. I nearly killed myself with post-pardom. I didn't know I was pregnant with my daughter, but as soon as I found out I quit taking it that day. But she too had Pyloric Stenosis. The odds of two children in the same family, especially the second being female, are off the charts for that.

My son has been getting worse with anxiety. The more anxiety he has, the worse his short circuit gets. He's been chewing his nails for six months. Now, he chews the pads of his fingers til they bleed.

I had five doctors and I don't know how many nurses tell me that taking Paxil was better for my baby than not taking it (since I kept refusing). I wasn't depressed. I was almost miscarrying and they wanted me to be stress-less as possible. I furious, ashamed, sad, and ready to spit fire!

Thank you for sharing your story with us. It is no...

2008-04-19T12:03:00.000-05:00

Thank you for sharing your story with us. It is not easy talking about going through something like that. You are proud of what you have gone through and you that you survived and you should be.

Manie will have to deal with surgeries and heart problems all of his life, but we are very thankful that he is able to do what he can do. Manie is here and I thank God for that everyday.

Thanks for the comment,
Julie

Heya, i have read your blog i bet that was a scary...

2008-04-19T11:42:00.000-05:00

Heya, i have read your blog i bet that was a scary thing to go through 2 operations bless! im glad he is alright now & you all can live your normal lives, he is so brave. I was born with a hole in the heart but no one noticed it until i had a check up at school once, i then went to the doctors & they said i couldn't have the operation until i was a bit older so i had to wait until i was about 6-7years old, i remember i didn't have the engery to do things i was always ill, when i had the operation it was good that i survived because if it wasn't for the school nurse i properly wouldn't be here today, i had a check up a couple of years ago & my heart is back to normal i now have a normal adult heart which i was relieved about. I now also have a scar down my chest & your Manie should be pleased with his scar like i am, i look at it as my life saving scar! & your manie is so brave! just thought i'd message you, & your all so brave!!!

The day Manie was born and the day he had heart su...

2008-03-20T18:25:00.000-06:00

The day Manie was born and the day he had heart surgery will forever be etched in your memory, but thank God all the wonderful memories you have are etched in your heart as are the memories you still have to look forward to.You and Manie are the strongest people I know.Justice will be served and GSK will be punished for the pain they have caused you,Manie, and all the other babies they have harmed.Love you all! Cindy